Comments on: The Gluten-Free Lie: Why Most Celiacs Are Slowly Dying https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/ Solutions for sensitive people with gut health issues. Tue, 08 Jan 2019 18:12:09 +0000 hourly 1 https://wordpress.org/?v=6.3.2 By: Lori Jo Berg https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-810579 http://scdlifestyle.com/?p=3361#comment-810579 In reply to Beth.

HI Beth – the webinar will dive into a few things you can do to dig deeper (like stool testing). You can read more here: https://healthygut.com/6-gut-infection-case-studies-why-you-should-get-stool-testing-done-asap/

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By: Beth https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-810517 http://scdlifestyle.com/?p=3361#comment-810517 I am nervous, I have been gluten free for almost 7 years and yet I still have gut issues. I have also since gone grain free, dairy free, egg free, sugar free and nut free. I cannot figure out how to finally heal. But I know I am not absorbing nutrition. I eat perfectly healthy but if I don’t absorb it it doesn’t matter. I look forward to your seminar.

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By: Barb https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-806875 http://scdlifestyle.com/?p=3361#comment-806875 In reply to Chasity.

People don’t heal because they eat gluten free foods that still has gluten in it. 20PPM is not gluten free. Corn can effect people like it was gluten and it is a type of gluten. They got gluten in everything and everwhere. I get sick on gluten free foods. There are very few that don’t make me sick. Pamela’s is one of them.

I consider eggs can carry a tad bit of gluten in the egg that the chicken eats. I had one insist that it can’t but I looked it up and one person did do research on such and a protein of what they fed the chicken did show up in the egg. I was not gluten but that can happen so can gluten. The lady was very insistent that I was ignorant on it. No my body tells me what it can take and can’t. I ate grain free fed chicken eggs and I was fine. So since it is winter I had to give up eggs again. The gluten free society has a different take on the standard GF diet. I think there is something to it. 10PPM is too much gluten. They can test down to 3 so that is the level gluten free food should be tested at and not a bit higher.

You will have to become and activist in this way of life. They even don’t have gluten free foods in senior centers and meals on wheels or anything and that is a violation of the disablity’s act.

I know how it feels to be sick much of the time.

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By: Lori Jo Berg https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-795313 http://scdlifestyle.com/?p=3361#comment-795313 In reply to Jessica Apling.

HI Jessica – yes, you should! Healing the gut is going to be key for you:)

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By: Jessica Apling https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-795255 http://scdlifestyle.com/?p=3361#comment-795255 I stumbled upon your page yesterday, right before i went to the ER for severe stomach pains. I was diagnosed with Celiac in March of this year. Like the girl above my comment i can still eat gluten and not have any effects. My rib cage is painful to the touch but my ultrasound and xrays have came back with no markings of imperfection, my recent stomach pains have been near and around my belly button but they have refused to do any other testings. I would love to give the leaky gut fix a try.

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By: Lori Jo Berg https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-794417 http://scdlifestyle.com/?p=3361#comment-794417 In reply to Sam.

Hi Sam – yeah that is definitely not typical. Were you eating gluten at the time of the tests?

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By: Sam https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-794309 http://scdlifestyle.com/?p=3361#comment-794309 Hey, not sure if anyone can help me here but I’m an aysomptommaic celiac diagnosed 6 years ago. I found out off a blood test, then had a conclusive biopsy indicating i have celiac disease, yet to this day I could eat any flour-based products ie pizza, bread, anything with flour in it and not feel any side effects but a bit of trouble keeping focused. I wouldn’t have any pain in digestion of these products if I ate them right now, wondering if I should get tested again

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By: Lori Jo Berg https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-787169 http://scdlifestyle.com/?p=3361#comment-787169 In reply to Chasity.

HI Chasity – We have a ton of information for you to read on Celiac disease and suggest you start by reading the following:

https://healthygut.com/2013/11/what-dr-tom-obryan-taught-me-about-gluten-related-disorders/

https://healthygut.com/why-gluten-free-diets-dont-work-and-make-me-angry/

https://healthygut.com/why-everyone-with-celiac-disease-needs-vitamin-d/

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By: Chasity https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-787166 http://scdlifestyle.com/?p=3361#comment-787166 I’ve been searching for a year in a half now trying to find something anything that will help this pain I’m in. I’ve been diganosed with celaic disease a last year. I’ve still been going to different doctors because even though I cut out gluten, dairy, soda, soy my stomach still hurts. I have lost of apateite I don’t feel hungry anymore. My stomach feels full when I eat just a few bites. It cramps and it aches. My joints hurt and I’m starting to get a headaches Doctors keep trying to give me anti-depressants. But I’m scared this may be cancer or something else I’m not sure. I’m only 19.
I hope this website helps, I’m trying to cook at home but I can’t offord an oven right now so I’ve been living off of rice.

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By: Lori Jo Berg https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-782206 http://scdlifestyle.com/?p=3361#comment-782206 In reply to Ga.

HI Gail, sorry to hear you’re feeling this way. I’d first recommend a new practitioner who is more willing to work with you and explain your results. (Make sure you ask them to if you haven’t yet!) If you’re interested in a new practitioner, you can find one here: https://healthygut.com/practitioners/ It sounds like you might have some thyroid issues just based on your symptoms, so perhaps you can ask your physician about that specifically.

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By: Ga https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-782010 http://scdlifestyle.com/?p=3361#comment-782010 Hello, does anyone have any knowledge about blood test results? I’m so confused and depressed about my findings. I don’t really have any digestive symptoms, mostly tingling, stinging, gnawing feeling in my feet and legs. At times it feels like a burning feeling under my skin. Some fatigue and brain fog.

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By: Lori Jo Berg https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-776997 http://scdlifestyle.com/?p=3361#comment-776997 In reply to InflammatoryThoughts.

Hello – thanks for sharing:)

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By: InflammatoryThoughts https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-776933 http://scdlifestyle.com/?p=3361#comment-776933 I had a poorly organized Celiac test (preceded by about 5 months of GF eating). Yet, when discussing the results the doctor was certain the relevant antibodies should show up at a detectable level, even though I had been GF (I didn’t properly communicate this at the time of the test, I guess). Yet I look at Celiac.org indicates that all blood tests *require* one to be eating a gluten-containing diet to be valid. Why isn’t this made clear to every single medical professional that can order the test? I’m now going to see about a genetic test to see if I can rule out CD (doubt it) and follow that up with a biopsy.

I’ve been unsure if my GI issues are at their core SIBO, dairy-related, or as a handful of all-together-too-smug commentators think it’s useful to suggest: “in my head.” It’s probably worth mentioning that overreaction likely holds fewer consequences for most people than missing a diagnosis. This is totally the inflamed me talking, but man is it annoying to hear arguments like “well there’s something to be said for going out with people and just being able to enjoy food.” Duh. But, there’s also something to be said for not getting brain damage from your food. 😀

I intentionally ate a piece of wheat bread last night to clarify the issue. The problem is definitely not in my head. Now that I’m suffering the consequences — irritability, bloating, joint pain and other random pains throughout the body, difficulty breathing deeply, reduced nerve sensation in my extremities, poor circulation, and big cognitive/social deficits I won’t describe in detail, I’ve decided to do some internet therapy by posting these gluten-reaction inspired thoughts. Please forgive any poor reasoning or negativity–normally I’d be more positive.

The worst part is realizing this issue could have been ongoing for years, decades, or one’s entire life. What kind of person would each CD or gluten-sensitive person be if they had never experienced the damage to their health this brings on? I wonder because my worst symptoms seem to be mental. It also seems clear that many angry and dissatisfied people may simply be suffering from inflammatory conditions.

Back to an elimination diet of whole foods and 0 whole grains.

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By: JFreddy https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-773256 http://scdlifestyle.com/?p=3361#comment-773256 Should Be Obvious.

Gut Health is a lifestyle, Not One Thing.
The Functional Medicine Protocol.

BTW, MAYBE POSTS SHOULD BE CURRENT TO OLDEST.
JUST A THOUGHT.

I LIFESTYLE COACH, FOR FUN, IN BELIZE.

A GOOD FRIEND’s MOTHER HAD AUTO-IMMUNE LIKE ALLERGIES.
SO BAD, SHE QUIT HER JOB.

I SUGGESTED
GLUTEN FREE, PROCESSED (CHEMICAL) FREE, NO DIARY FOR AWHILE,
FERMENTED FOOD PER DAY, PROBIOTICS,
EXPLAINED BONE BROTHS TO HER,
ANTI-INFLAMMATORY & ALKALINE, LOW GLYCEMIC FOOD PLAN.

GETTING A FULL COMPREHENSIVE FEMALE HORMONE PANEL.
YES, HCL & DIGESTIVE ENZYMES.

FEW ARE READY FOR GREEN COFFEE ENEMAS, UNLESS LATE STAGE CANCERS.

ANYWAY, IN JUST 7 DAYS, ALLERGIES GONE & lost 7 LBS.
HE IS NOT OVER WEIGHT.

AS SAYER JI, MARK HYMAN, TY BOLLINGER, THE HEALTH RANGER, MEECOLA, DONNA GATES, PEARLMUTTER, ALL THE ESSENTIAL OILS PEOPLE, AND A WEALTH OF MORE,
**THINGS ARE CHANGING.
A MOVEMENT.

CHEERS

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By: Mariel Heiss https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-769777 http://scdlifestyle.com/?p=3361#comment-769777 In reply to Megan.

Hey Megan – thanks for reaching out.

Our goal certainly isn’t to scare people or make them feel hopeless – but the truth is that Celiac disease is a very serious diagnosis and we don’t think a gluten-free diet alone is enough to heal from Celiac.

I suggest you read this article for more info on Celiac and what you can do ti heal your gut: https://healthygut.com/celiac-disease-101/

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By: Megan https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-769702 http://scdlifestyle.com/?p=3361#comment-769702 In reply to Jordan Reasoner.

A 76% increase in death the first year of diagnosis? Thanks for handing out a death sentence to someone newly diagnosed and scared ?

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By: Mariel Heiss https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-768351 http://scdlifestyle.com/?p=3361#comment-768351 In reply to Katey.

Hey Katey – thanks for reaching out!

There is no one supplement you can take to heal leaky gut. Anyone who tells you there is is lying. Healing your gut requires addressing your diet, modifying your lifestyle (like managing stress) AND the use of some healing supplements.

We explain how to do each of these three steps in our free webinar here: http://solvingleakygut.com/webinar/internal-autoimmune/

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By: Katey https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-768229 http://scdlifestyle.com/?p=3361#comment-768229 I always knew there was more to just a GF diet. I was diagnosed with celiac disease about 3 years ago and my health is plummeting. I need help. I am scared. If there is a product I can purchase to reverse leaky gut I NEED to get my hands on it. Please help me! )’:

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By: Kamila https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-767179 http://scdlifestyle.com/?p=3361#comment-767179 In reply to Mike.

Couldnt agree more! I belive fibre and soya milk and brown breaf got me into celiac which I discvered after bad unexpected anemia. Until after I reduce intake of most veg (even cooked carrots caused sympomos) i could start feeling something was healing.
Most important tho-celiacs dont listen to their gut but to the ‘healthy info’ out there. Good luck everyone, take it easy, breath properly and be easy on urself.

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By: Mariel Heiss https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-763165 http://scdlifestyle.com/?p=3361#comment-763165 In reply to angela.

Hi Angela – please start here: https://healthygut.com/celiac-disease-101/

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By: angela https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-763109 http://scdlifestyle.com/?p=3361#comment-763109 I haven’t been diagnosed with celiac but have all the signs and am REALLY suffering and feel exhausted because my symptoms seem to be worse then alot of ppl. I need help on how to control this its a horrible disease. I have a caffeine sensitivity as well and its all hell. I eat gluten free but its not enough although im sure stress is to blame also. i need to know if i should go to a specialist or just my primary md for help
Angela

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By: Mariel Heiss https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-760733 http://scdlifestyle.com/?p=3361#comment-760733 In reply to Fia.

Hi Fia – if you need to rely on added fiber supplements to poop, you might want to check this out: http://constipationhelp.scdlifestyle.com/

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By: Fia https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-760543 http://scdlifestyle.com/?p=3361#comment-760543 In reply to Mike.

Mike I disagree with you about the fiber issue. I need tons of fiber daily as a celiac or else I get constipated. Fiber is helping me immensely to have normal bm. But I don’t eat too much raw stuff because it does seem to be somewhat irritating. I use the metamucil type–psyllium seed husks.

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By: Mariel Heiss https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-758367 http://scdlifestyle.com/?p=3361#comment-758367 In reply to Jared.

Hey Jared – thank you for commenting 🙂

We are really interested in this field of research as well. We’re hoping to have some content to share related to this topic soon.

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By: Jared https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-758279 http://scdlifestyle.com/?p=3361#comment-758279 There is a bunch of recent research showing how the endocannabinoid system plays a significant role in Celiac and other digestive system autoimmune diseases, and I’ve seen a significant amount of anecdotal reports of successful treatment with medical marijuana. More compelling is the fact that The most effective forms are in the raw, unheated, non-psychoactive state such as CBDA and THCA – meaning you can heal without feeling high. This could be the treatment that so many people need, as diet alone is a long, hard road to recovery

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By: Mariel Heiss https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-753837 http://scdlifestyle.com/?p=3361#comment-753837 In reply to Coleen.

Awesome to hear what is working for you Coleen – thank you for commenting 🙂

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By: Coleen https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-753794 http://scdlifestyle.com/?p=3361#comment-753794 In reply to Mary.

Mary, I had exactly the same problem — gut issues got worse when I went GF 3 years ago! Just about everything put me in the bathroom, but especially other grains, veggies, even rice noodles! About 8 mos. ago I got on a “zero carb” (meat, eggs, cheese, etc.) and have never felt better! If I stray from this way of eating, I pay for it! I also lost the few pounds that I couldn’t get rid of.

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By: Jimmy https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-751279 http://scdlifestyle.com/?p=3361#comment-751279 I am a celiac. I am 30 years old and i am an rn. It frustrates me that the medical field does not embrace this solution. It seems like they want to kill us. Or they are sutroinded by so many people who do not want to recover from illnesses. My illness has progressively worsened over the past 10 years. In the past 3 years, After development of severe neurological symptoms, nagging muscle spasms, blurred vision, headaches, mood changes, extreme fatigue, unbearable stomach pain as well as back and joint pain that had me barely able to function at work and unable to get off the couch at home. If i had one beer it would knock me out for hours, I’d be so slept I could barely open my eyes. i would get severe brain fog. It was very depressing because i have always been active and sharp. I thought i had cancer and had many tests done. I thought it was impossible to hurt as bad as i did and not be dying. So anxiety was increasing along with anger and disappointment couldn’t find the problem. Blood test came back negative and I felt like a hypochondriac for pressing the issue especially as an rn. I mean come on I’m one of them right? I finally took the illness seriously thanks to the encouragement of my wife. I started out listening to my body and eliminated the things that actually felt like poison when I ate them (within 30 min of eating gluten severe reaction extreme pins and needles pain in my abdomen, symptoms mentioned above and extreme bloating that made my chest feel crowded and I would get heart palpitations and be short of breath . My wife in her wisdom suggested paleo. I went full paleo, but avoid eating a lot of meat. I eat a lot of food still, diet is whole foods no artificial sugar, small meat portions. I also noted that coffee had the same effects as gluten on me and I had to quit that as well. I found my energy returning my enjoyment of life, I can think clearer, my mood stabilized. My symptoms completely resolved after 6 mos. I relapsed when summer hit (hard to avoid BBQ hotdogs and hamburgers without buns). All my symptoms returned I’m getting back on the wagon and staying on. I never want to feel this again. Just had paleo thanks giving. Avoided the beer so I could stay awake. This article reminded me that celiacs is not a joke it can cause irreparable damage. The sooner the change the better. Thank you for sharing this.

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By: Deborah https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-746876 http://scdlifestyle.com/?p=3361#comment-746876 Thank you for this.
I want to offer a pretty simply suggestion for leaky gut. Slippery elm bark and licorice powder combined (3 to 1 ratio) and made into a paste and taken 3 times a day goes a long way to heal the gut lining. Also aloe very gel.

Warm and healthy regards,
Deborah

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By: Mariel Heiss https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-744692 http://scdlifestyle.com/?p=3361#comment-744692 In reply to Meany Eddy.

Hi Melany – we’re so sorry you’re still struggling with Celiac’s.

Jordan was sick too, until he switched to SCD.

The good news is, we believe SCD can help you far more than a traditional GF diet.

The best place to start is with our Free quick start guide here: https://healthygut.com/scd-quick-start-guide/

From here, we highly recommend following the directions in the eBook for best results: http://scdlifestylebook.com/

I hope you’re feeling a lot better soon – if you have questions or need support on the diet let us know at support@scdlifestyle.com

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By: Meany Eddy https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-744681 http://scdlifestyle.com/?p=3361#comment-744681 HI Jordan
I am about to do start the SCD diet. I was diagnosed 7 years ago with Celiac disease while pregnant with my daughter. I have been adhering to what I thought a pretty strick GF diet only to recently have a colonosscopy results back which say I have about 90% worse damage! Now doing my own research I am devastated to think I have been lead to believe just a GF diet would help me!!! 🙁 I live in New Zealand and feel doctors & nutritionist might not be quiet up to speed!?! Please help!!!

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By: Mariel Heiss https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-743953 http://scdlifestyle.com/?p=3361#comment-743953 In reply to Amy.

Hi Amy – thanks for your comment! Of course, there is no way to know if people in the studies are cheating or not. On top of these studies, however, we have a lot of anecdotal and personal experience in typical “gluten-free” diets not being enough to create lasting health. Many people who react to gluten also react to dairy because the protein casein in dairy is really similar to gluten, based on our research!

Glad we could connect with you here!

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By: Amy https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-743885 http://scdlifestyle.com/?p=3361#comment-743885 In reply to Jordan Reasoner.

I do wonder in the studies you mention how many of the subjects are actually 100% gluten-free. Are they just reporting gluten-free but actually cheating at times? I agree that dairy needs to be removed until the villi grow back. It is my understanding that the milk digestion enzyme factories are in the tips of the villi which are missing because of the gluten lesion. Have you ever heard this?

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By: Mariel Heiss https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-742820 http://scdlifestyle.com/?p=3361#comment-742820 In reply to Mrs. Kay Thompson Bailey.

Thanks so much for sharing your perspective. Celiac disease is a real health concern – and you’re right that those with a true allergy to gluten have to be extremely careful in what they eat!

However, leaky gut is a term used by real doctors (you might also hear them say intestinal permeability) and it is directly related to many autoimmune diseases (like Celiac). We encourage you to attend one of our free webinars of leaky gut to learn more.

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By: Mrs. Kay Thompson Bailey https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-742759 http://scdlifestyle.com/?p=3361#comment-742759 No such medical term as leaky gut. Thats where you lose me cobbling such scientific reports does not help either. HATE BOTH LEAKY GUT AND GLUTEN FREE. It is used because its easier to say gluten is vegetable and fruit based so no one is ever truly gluten free. Its used instead of i am allergic to wheat, rye,barley and my case oats. You not only have to watch your food but all skin products with some form of those things it and hair products. No buying cut luncheon meat in stores unless its gf and pre packaged. Alot of people do not understand its an allergy. People that are allergic to nuts have to do the same thing. It doesnt just effect your intestines. Can lead to loss of teeth and major organ damage. If you have been diagnosed with celiac and arent getting this info from your physician find a new doctor. I come from a long line of nurses. I was also one and worked in a lab. I also question every physician I have and read up on medical articles all the time. True scientists and phycisians do use terms like LEAKY GUT!!!!!

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By: Mariel Heiss https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-737903 http://scdlifestyle.com/?p=3361#comment-737903 In reply to LM.

Hi LM – we update the blog all the time!

This post went live today: https://healthygut.com/the-truth-about-gluten-free-food/

I hope you enjoy it 🙂

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By: LM https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-737665 http://scdlifestyle.com/?p=3361#comment-737665 Hi, is there any updated information?! These posts are mostly from 2012!
Thanks

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By: Lori Jo Berg https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-721732 http://scdlifestyle.com/?p=3361#comment-721732 In reply to Sharon.

Hi Sharon, adapting to an antiinflammatory diet is the first step and then please read here for more info: https://healthygut.com/natural-cold-and-flu-management/

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By: Sharon https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-721708 http://scdlifestyle.com/?p=3361#comment-721708 Hi my 5 year old was diagnosed with Celiac disease last year.. Even though she’s on a strict gluten free diet had CRP levels remain high although her platelet count is now normal/high 360 so the diet must be working. She also hates meat presumably because it’s hard to digest. She will eat well cooked mushy lean mince as encouraged by health care provider. I would love to know if there are any extras or sides high in b12 as she is periodically deficient and becomes anemic. She is also prone to illness and has WBC issues when she is sick. I would appreciate any help/info you have on remedies preventing the severity of colds/flues in young children.

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By: Sonia https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-720343 http://scdlifestyle.com/?p=3361#comment-720343 I was diagnosed with celiacs 4 years ago.in 1995 I was diagnosed with acute lymphocytic leukemia fo tourth stage I had a bone marrow transplant I have been in remission since. My brother was diagnosed with celiacs disease in 1993 he was brought to the emergency room for a psychotic episode was having thoughts of killing his daughter. Previous to this visit he was there do to sever fatigue and stomach problems. The doctor who treated him was studying to specialize in celiac disease. Much to everyone’s surprise he was admitted to the hospital for being severely malnourished due to celiac disease….the gas that accumulate in the gut dispersed his brain causing the disillusion he was going through. Well my brother was my bone marrow doner doctor said celiac disease could not be transmitted through bone marrow. We still don’t know if that is a fact.I have had symptoms of celiac disease shortly after transplant well they also similar to how you would be feeling post transplant any way. I always have suffered from chronic pain almost always severe. For ten years had diarrhea so badly had to use liners on my bed so at night while sleeping I wouldn’t soil the bed. Doctors always related it to my cancer treatment. I was diagnosed by my current APRN who believed that I might have got celiac disease through transplant or genetics. The surgeon beforming an endoscopy of my small intestine asked me my parents nationality told him Poland and Sweden he said I had celiac disease most likely it was genetic. He said I had no fillia in my small intestine at all and I was the first patient he had ever seen in 25 years he practiced as a GI surgeon.My story is much too long to continue. My faith in medicine practices in the USA is non existing and even less in pharmaceutical companies. The article and personal struggles told makes me feel not alone.Sonia

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By: Lori Jo Berg https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-715815 http://scdlifestyle.com/?p=3361#comment-715815 In reply to Shelley.

Hi Shelley, thanks for reaching out! It would be a good idea to see what is going on, even you feel Ok at this point. You might think you feel OK but experience a whole new level of energy when you address the diagnosis.

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By: Shelley https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-715800 http://scdlifestyle.com/?p=3361#comment-715800 I was diagnosed with celiac disease 5 years ago. I do not suffer with any of the symptoms. If I remember correctly I was only at “level 1”. Do I need to check it out even if I feel fine?

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By: Lori Jo Berg https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-714412 http://scdlifestyle.com/?p=3361#comment-714412 In reply to Rick Wolf.

HI Rick, thanks for reaching out! The most important thing here is to get on the SCD diet or something similar so you can begin the healing process. It is also a good idea to work w a practitioner for this condition and a supplement program. Next, digestive enzymes can help the effects of consuming gluten, but this is not going to allow you to get to the root of the issue and heal the gut. If you need a place to start, please go here: https://healthygut.com/scd-quick-start-guide/

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By: Rick Wolf https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-714017 http://scdlifestyle.com/?p=3361#comment-714017 i have celiac disease diagnosed 4 years ago. I have gas attacks at times and reflux even if I am careful. If I eat gluten by accident the gas & reflux is worse. Some of the more common gas comes from my divaticulosis. The doctor prescribed omeprazole 20 mg before my main meal. Sometimes I need to take one in the morning and one at night.
What do suggest I take when getting an celiac attack after eating something wth hidden gluten? Is there an experimental program I could take part in?

Thanks, Rick

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By: Lori Jo Berg https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-704251 http://scdlifestyle.com/?p=3361#comment-704251 In reply to Louise.

Hi Louise, thanks for reaching out! It sounds like you are having a reaction, and most people do, to allergenic foods such as wheat and gluten. We highly suggest adjusting your diet to eliminate all the top allergenic foods and we are confident you will see much improvement with your symptoms. For more information, please start with our Gut health quiz here: solvingleakygut.com

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By: Louise https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-703985 http://scdlifestyle.com/?p=3361#comment-703985 Hi,
looking for some advise please.
I started Atkins diet 6 months ago aiming to loose weight.
I lost 10 kg eating very low carb diet and felt great.
After I reached my weight goal I started back on a fairly normal diet.
Within 2 weeks I had this upper L sided abdo pain. I saw GP and prescribed nexium and arranged a gastroscope. I have had previous gastritis and GERD problems.
Gastroscope showed chronic gastritis with lymphocytic infiltration in stomach.
I have noticed some consistent reactions to bread, within 2 hrs after eating bread I’m bloated, gas, L sided abdo pain, irritable and tired.
I have tried gluten free for 5 weeks and managed to wean myself off nexium. Still have a bit of pain but not severe.
I ate bread over the last few days again and after a few days similar reactions, tired, bloated, bad pain and irritable.
The gastroscope was negative for celiac, ultrasound normal, bloods normal, tumor markers negative and xray normal.
I have read that this type of gastritis is often associated with celiacs . I also have two family memebers with celiacs.
My GP has referred me to a surgeon. I’m at a loss what to do.

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By: Lori Jo Berg https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-699927 http://scdlifestyle.com/?p=3361#comment-699927 In reply to Maria.

HI Maria, thanks for reaching out. Once your gut has healed, you may be able to deviate a small amount, but this is something you are going to have to test out on your own. Ideally, you will continue to eat from the your safe food zone to continue on the path of health.

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By: Maria https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-699786 http://scdlifestyle.com/?p=3361#comment-699786 I just wanted to ask, if I have celiac disease, should I stick to SCD diet for the rest of my life or just until I get my gut under control?
Thank you,
Maria

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By: Cathy https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-681890 http://scdlifestyle.com/?p=3361#comment-681890 In reply to Rhiannon Wootres.

Rhiannon, it has just been suggested that I may have Celiac Disease. I get a biopsy next week. After having a reaction to soy sauce, which I didn’t know had wheat in it, I decided to look-up Celiac so I could avoid those foods. I became terrified reading this article. This guy offers no new diet … it’s basically the same as a GF diet but presents “studies” which say we’re 77% more likely to develop cancer and to die before we’re old? Really? How is this at all helpful. I’m a little afraid, but really mad, too. I’m sure this guy has slanted results to sell his book.

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By: frank https://healthygut.com/the-gluten-free-lie-why-most-celiacs-are-slowly-dying/#comment-667486 http://scdlifestyle.com/?p=3361#comment-667486 In reply to Jessica.

Hi Jessica,
I relate to your comment. Right now you still are on the G-F diet but you are also doing something else? I’m kind of new at celiac and not sure I am clear about it all.
Thank you,
Frank

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